Caregivers of individuals with Fetal Alcohol Spectrum Disorder (FASD) often face significant concerns regarding interactions with professionals and people in authority. These concerns are rooted in the cognitive and behavioral challenges associated with FASD, which can lead to difficulties in understanding.
Author Archives: jodeekulp
FEAR: Caregiver Harm
Caregivers of individuals with Fetal Alcohol Spectrum Disorders (FASD) often face significant challenges and fears related to their caregiving role. These fears stem from various factors associated with the complex nature of FASD
DESIRES: Support That Works
You can create a supportive daily routine that helps an adult with FASD navigate their day more effectively, reducing stress and promoting independence.
DESIRES: Managing Calm in Meltdown
Creating a calm space for your child can be an effective way to help them self-regulate and find comfort during overwhelming moments. Meltdowns come with brain injury territory. Being prepared as a caregiver helps.
DESIRE: Stomping Stigma
Stomp Sigma! We’re not talking about just any stigma; we’re talking about the kind that clings on like a bad internet meme. So, grab your helmets and let’s take a joyride through the humorous side of stopping stigma, Stig-style!
DESIRE: Keep the Calm
When you’re a caregiver for someone with Fetal Alcohol Spectrum Disorders (FASD), it’s important to have strategies in place for those moments when you feel triggered or overwhelmed.
DESIRES: Improved Understanding and Awareness
Many caregivers wish for greater public and professional awareness of FASD to reduce stigma and improve understanding of the challenges faced by those with the condition. Red Shoes Rock FASD Aware needs your participation and support.
ZAK’s FASD Puppet Show SCRIPT
Public Community Event opportunity: Creating a puppet show script to simulate and raise awareness about living with Fetal Alcohol Spectrum Disorder (FASD) can be both educational and engaging.
DESIRES: Family and Friends to Help
We are grateful – little means SO MUCH. One dropped off an egg bake and another dropped off a pasta dish. We were too busy to celebrate holidays and Thanksgiving and Easter arrived with smiles. We had already downsized everything. Brush was cleared from the front of the house, a closet cleaned, loads of clothes washed, dishes and kitchen and bathroom while we attended Liz at clinics and hospitals and in her home.
DESIRE: Is it Lying or Confabulation?
By understanding the differences between confabulation and lying, caregivers can better support individuals with FASD, helping them navigate social interactions and build trusting relationships.