Creating a calm space for your child can be an effective way to help them self-regulate and find comfort during overwhelming moments. Meltdowns come with brain injury territory. Being prepared as a caregiver helps.
Author Archives: jodeekulp
DESIRE: Stomping Stigma
Stomp Sigma! We’re not talking about just any stigma; we’re talking about the kind that clings on like a bad internet meme. So, grab your helmets and let’s take a joyride through the humorous side of stopping stigma, Stig-style!
DESIRE: Keep the Calm
When you’re a caregiver for someone with Fetal Alcohol Spectrum Disorders (FASD), it’s important to have strategies in place for those moments when you feel triggered or overwhelmed.
DESIRES: Improved Understanding and Awareness
Many caregivers wish for greater public and professional awareness of FASD to reduce stigma and improve understanding of the challenges faced by those with the condition. Red Shoes Rock FASD Aware needs your participation and support.
ZAK’s FASD Puppet Show SCRIPT
Public Community Event opportunity: Creating a puppet show script to simulate and raise awareness about living with Fetal Alcohol Spectrum Disorder (FASD) can be both educational and engaging.
DESIRES: Family and Friends to Help
We are grateful – little means SO MUCH. One dropped off an egg bake and another dropped off a pasta dish. We were too busy to celebrate holidays and Thanksgiving and Easter arrived with smiles. We had already downsized everything. Brush was cleared from the front of the house, a closet cleaned, loads of clothes washed, dishes and kitchen and bathroom while we attended Liz at clinics and hospitals and in her home.
DESIRE: Is it Lying or Confabulation?
By understanding the differences between confabulation and lying, caregivers can better support individuals with FASD, helping them navigate social interactions and build trusting relationships.
DESIRES: Respite When There is None
You Deserve a Timeout! If you’re navigating the wild world of parenting—especially with kids who have special needs—you know that sometimes you just need a break.
DESIRES: Appropriate Services and Support Access
Caring for a person with Fetal Alcohol Spectrum Disorder (FASD) can be a challenging yet rewarding experience. As a caregiver, accessing appropriate services and support is crucial to ensure the well-being of both you and the individual with FASD.
FRUSTRATION: Your Medical Journey
The deeper I fall into the medical system the more I know I knew so little when all this began. I was at the mercy of the medical people who did not even know me or how my body works. I am smarter now.