Meet Toya – #5 of 90 Real People with #FASD

FASD WITH HOPE

Day Five of our 90 Day Count Down to September 9 – And Mac has been busy collecting friends and sharing them. We are so appreciative of each of you! We’re loving the action. People are out strutting and jumping and rolling and climbing with their RedShoesRock.

MEET TOYA – Hi, I’m Toya and I was born in Sacramento California on July 4th 1995. I was 1 pound and 10 ounces at birth and I was born to an alcoholic. I am now 20 about to be 21 in just under 3 weeks from now and I have an FASD diagnosis of ARND (alcohol related neuro-developmental disorder). I have a learning disability in math but my IQ is well into the gifted range (above 140).

MY STORY – I was born prematurely, went through many foster homes, experienced abuse and neglect prior to age 5, I also had 3…

View original post 828 more words

Meet Emily – #32 of 90 Real People. Real Lives #FASD

FASD WITH HOPE

MEET EMILY — Emily possesses a passion for sharing her personal story, the story of so many, a story worth being told. She travels internationally educating and advocating on behalf this 100 percent preventable pandemic.

She has served as a member for SAMHSA’s Fetal Alcohol Spectrum Disorder (FASD) Center for Excellence Expert Panel. Currently, along with two other individuals with a diagnosis along the spectrum, Emily is conducting research collecting data on the physical ailments that arise in adults with an FASD diagnosis, a lifelong, full-body diagnosis.

Emily is a founding member of the first national self-advocacy network, Self-Advocates with a Fetal Alcohol Spectrum Disorder in Action (SAFA). Though she was born addicted to alcohol and cocaine and had marijuana in her system, and though doctors told her adoptive parents she likely would never make it through school,

Emily graduated Summa Cum Laude, ranking number one of her graduating class…

View original post 211 more words

10 Things You Need to Know About #FASD

FASD WITH HOPE

90 Real People. Real Lives – Red Shoes Rock International Relay
Guest Blogger Ann Yurcek
Visit her blog at Parenting Complex Children

Day 10 Ten Things You Need to Know
About FASD (Fetal Alcohol Spectrum Disorders)

  1. People with FASD have challenges due to no fault of their own.  They are innocent victims of Prenatal Alcohol exposure.
  2. FASD is complicated and no two people are alike. Prenatal alcohol exposure can cause damage to any system of the body.  In recent medical literature there were found to be over 400 different diagnoses and problems are associated with FAS.
  3. Most of the time FASD is invisible.   People with FASD can look normal, but struggle with normal. Only 1 out of 10 will have the visible physical characteristics associated with prenatal alcohol exposure.
  4. Most people with FASD will have a normal intelligence.  Some will have high intellect and still struggle.  The majority will need…

View original post 241 more words

Meet Andrew – #4 of 90 Real People with #FASD

FASD WITH HOPE

It’s Day 4 of our countdown to 90 days before International FASDay… Need some ideas for an event visit 60 Days of FASDay Countdown or go check our www.FASworld.com.

Today we have Andrew running as Mac’s friend.

Meet Andrew – He is a champion on the track and an inspiration at the podium. Having competed in running circles for 12 years, Andrew is competitive at every distance from the 400M to half-marathons. Over the past three years, he’s spoken from memory about his challenges from FASD but also his triumphs.

Andrewbaby-adultMY STORY – At three weeks of age, Andrew was found alone with his two-year-old sister. His birthmother was self-medicating with alcohol throughout the pregnancy. .

STRENGTHS – Although not a talker until age 6, he is gregarious and loves being around people. He’s always wanted to be included with his peers – willing to learn by watching.

STRUGGLES

View original post 130 more words

Meet James – #3 of 90 Real People with #FASD

FASD WITH HOPE

This is Day 3 of our 90 Day Countdown to September 9. Please help us get the word out and get to know 90 Real People. Real Lives.

MEET JAMES. James is a dynamic adult, loving companion and great father of some super hockey players. He works directly with kids in the Ontario justice system to help them get on the right life path. Many who also have FASD. He works with a fitness/health coach who he is reciprocating coaching on FASD and how it affects a person. James runs the Facebook page

JamesGideonHorseMY STRENGTHS – My Culture, having my Spirit Name: Eagle When He Flies, Clan : Wolf Clan, my Medicine Bundle all the gifts I have had given to me and the medicines I use to better my life, the Fasd Eagle Staff I carry, the life I lead and my spiritual life. My strength comes through the…

View original post 492 more words

Day #11 – Meet Mac – A Real Boy with a Real Life and #FASD

FASD WITH HOPE

People have been asking to learn more about Mac – so I will be sharing Ann Yurcek’s blog posts here as my guest blogger to learn more about #FASD and how it affects families, the community and most importantly the people who face the challenges daily.

Day 11: Meet Mac

1
I received an email from a long time friend asking to use a picture I had recently posted on my Facebook thread to raise awareness about Fetal Alcohol Spectrum Disorders. Of course I said “yes”!

We cannot raise awareness about FASD’s and rallying for supports for those affected unless we find the courage to step up and put it out there.  Brainstorming with Jodee we planned and launched the 90 Real People Real Lives campaign.  We day by day would reach out to the FASD support groups on Facebook to find people, parents and kids courageous enough to share about…

View original post 387 more words

Meet RJ – #2 of 90 Real People with ‪#‎FASD

Way to go lead trail guide – we enjoy your guidance on this foggy, muddy and weedy crooked path – together we add light and blazes to this trail.

June 14, 2016
R.J. FORMANEK – DAY 2 – RED SHOES ROCK – 90 REAL PEOPLE – REAL LIVES

My story: RJ was refused at birth, raised by family and later social services, left home at 15, had numerous jobs, became photojournalist and now writes, speaks and educates about living with FASD.

Strengths: RJ is energetic, positive and always seeking to share a smile or a hug… Remaining positive in the face of negatives to find a better way.

Struggles: Diagnosed with PFAS (Partial FAS) RJ struggles with short term, or working memory, has some physical issues due to the FAS and is currently working on getting more than five hours sleep a night.

RJ’s Wish: That others need not experience what I and so many others have gone through because FASD is not understood; that by bringing light to the subject we can improve the chances, and the lives of so many others.

VISIT RJ Formanek Red Shoes Rock FASD Aware Page 2020

SIGN UP FOR OUR NEWSLETTER BELOW – JOIN THE MOVEMENT

embraced-redshoesrock-merged
Visit us at http://www.embracedmovement.org to learn more about the 90-minute documentary. Join us is sharing the Red Shoes Rock FASD Aware information at http://www.facebook.com/RedShoesRock/

FASD WITH HOPE

Day Two of our 90 Day Count Down to September 9 – We’re loving the action. People are out strutting and jumping and rolling and climbing with their RedShoesRock.

MEET RJ.– This is the founder and leader of Flying with Broken
Wings support group for persons living with FASD, professionals
and their families. He is also the co-creator of our Red Shoes Rock program. RJ makes a difference in the lives of our precious families by serving at the helm as our trail guide and expert  moderator. In 2016 he received the Individual Award
of Excellence for his work .

My story: RJ was refused at birth, raised by family and later social services, left home at 15, had numerous jobs, became photojournalist and now writes, speaks and educates about living with FASD.

Strengths: RJ is energetic, positive and always seeking to share a smile or a…

View original post 88 more words

Meet Mac – #1 of 90 Real People with #FASD

Go Mac! Day 1 and let’s see your next 90 friends. Love you Big Guy!

FASD WITH HOPE

Day 1 – Red Shoes Rock takes off with a fast start – Thank you Mac for sharing you life with all of us! Get healthy in 90 days and build awareness of FASD with Mac and his friends.
Share this with friends and Like our page on Facebook

MEET MAC – He is a sweet little boy, full of joy and energy and a busy body. His parents and whole family and his community work together to make a difference in helping him reach milestones other children naturally achieve. You see Mac began his life in a very hard place. He was immersed with alcohol in the womb. As a strong person he survived his first battles to live before he was even born.

MAC’S STORY – premature, abandoned, foster care, critically ill and adopted into the family that never gives up. He has been surrounded by everything…

View original post 65 more words

FREE Valentine’s Day Challenge – 200 sobriety pledges to prevent #FASD at #redshoesrock

FASD WITH HOPE

Entering the campaign is FREE
The cost to society and the life of one person is not.

SAMPLE PINTEREST BELOW

ExpectantCampaign

  1. Join RedShoesRock and take a pledge for sobriety during pregnancy.
  2. Get featured at #RedShoesRock for taking a sobriety stand with us.
  3. Share on Facebook-Instagram-Pinterest-Twitter

All the pieces you need are here:

Just add your photo and ultrasound

Or we can create it for you – email jodeekulp@gmail.com with SUBJECT: Sobriety Pledge

YOUR TEMPLATE

ExpectantCampaign-Blankredshoesheart-FASDFaith2 2

View original post

Did the ground hog see his shadow? Ask us.

It’s Ground Hogs Day – and the answer to did the ground hog see his shadow? Is….

Well that depends on where you live – so I guess the answer is variable.

2-Red-4And that’s what happens with fetal alcohol spectrum disorders – the results are variable and most of the results are hidden – coming out in the open later in life… organ, immune and blood issues surprise us… and complicate life even more!

Help us make the invisible visible – Be a friend to a person living with invisible life challenges – join #redshoesrock – and realize pointy shoe people can hang out with walmart tennies – but all of us have something to share together.

Walk with Red Shoes Rock. Stop FASD.

%d bloggers like this: