Day 1 – #RedShoesRock for #FASD Visibility

Welcome to all who are participating in this first ever “Let’s Get Visible” campaign.


Life is hard… but I won’t quit!

What does it mean to be a person living with fetal alcohol spectrum disorders?

… It is the infant who is unable to suck and tolerates most infant formulas and is failure to thrive, does not sleep, cannot adjust to lighting or noises and is unable to sooth

… It is the two year old whose temper tantrum is MORE  (a limbic system overload into never never land), does not sleep, cannot adjust to lighting or noises and is unable to sooth

… It is the preschooler who watches as friends skip across a playground and has the first realization she is different

… It is the elementary school student who loved being read to and discovers he can not read

… It is the middle school student who desires friends so badly he will do anything to attain one

… It is the high school student who helps a friend and ends up in juvenile detention – the friend has disappeared

… It is the transitioning adult who self-medicates to cope and tumbles into addictions

… It is the adult who learns to conquer his or her past and rise above it… the challenges are not gone nor are the brain or body issues. But they have survived –  and they are now standing in knowledge for the next generation.

This campaign is for our people who walk daily with the challenges of FASD—as survivors of alcohol in the womb. We have seen when they expose their disability it  has led to bullying, laughter and many misunderstandings and when they have tried their best to hide there issues the same thing has happened. It takes strong adult survivors to stand up and say “enough” we are invisible no more!

For caregivers and loved ones who understand this diagnosis intimately we have been bullied, laughed at and misunderstood also whether we share the diagnosis or not. FASD is not invisible. It seeps out of the cracks and crevices of our lives as we work, learn and play…

Thank you for stepping out in RED SHOES ROCK with our people!


Welcome to Red Shoes Rock where Visibility Stops FASD


walkinmyshoes9 for 9.9
Red Shoe Rock Challenge

Put on a pair of Red Shoes and walk, run, swim, work, shop or wheel ROCK out the invisibility of FASD for 9 Miles or 9 kilometers before International FASDay on September 9. This is a virtual challenge so you are on your own.

  1. 9 Day Challenge – September 1-9  Make some forward motion of 9 Miles or 9 Kilometers in 9 Days
  2. 31 Day Challenge – August 9-September 9 – 350 people committed to make some forward motion of 9 Miles or 9 Kilometers in 31 Days
When someone comments on your shoes -TELL THEM ABOUT FASD! And why you are wearing them.
OK everyone – Time to Run – Walk or Wheel. Let’s get our MOVE ON!!
– Rock out invisibility
– Rock out stigma
– Share an important message
– Have some fun!
We believe we can Rock Out FASD – so put on a pair of RED SHOES and share your Rock Out photos for the next 30 days on our FACEBOOK page -LIKE our page and SHARE our page – Let’s get some movement going – Get your Red Shoe Rock On!


Include these hashtags in your tweets or your photos on instagram include:

  • #redshoesrock
  • #fasd
  • #049
  • #fetal alcohol
  • #liveabilities

Visit our hashtag sites to see what is being tweeted:


Visit us at to learn more about the 90-minute documentary. Join us is sharing the Red Shoes Rock FASD Aware information at

Kicking off “RED SHOES ROCK – STOP #FASD” Campaign Today

Sharing from the Lighter Side of FASD!


RedShow-GravatarThe countdown to September 9, 2014 has started and Better Endings New Beginnings and Flying with Broken Wings decided we needed a quality kick off to up the momentum around the world.

So FASD Survivor Navigator RJ Formanek, Liz Kulp, Sam Guerrido and Jodee Kulp joined forces to begin a movement people can have fun and talk about FASD at the same time.

We’re challenging everyone to walk – wheel or run 9 miles in 30 days – that’s 3 blocks a day folks – we can all do that!

What we will provide …

  1. The development of a world community meeting in one place to make a difference to build awareness of FASD. 
  2. Fun ideas and silly photos.
  3. A Facebook page where everyone can meet up and chat

What do we need from you…

  1. Action – get some red shoes and have fun in them
  2. Photos –…

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