2020 Red Shoes Rock Kick Off

2019-Art-Download-1

Looking to find the Artwork for your Red Shoe Rock Events and Swag – We can’t wait to see what you do with these – HAVE FUN if you need the original artwork for translation work email info@redshoesrock.com and we will help you.

Here’s how you capture these images –
1. Hover over image you want
2. Right mouse click
3. Go to SAVE IMAGE AS – it will open you to area on your own computer to download – SAVE

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embraced-redshoesrock-merged
Visit us at www.embracedmovement.org to learn more about the 90-minute documentary. Join us is sharing the Red Shoes Rock FASD Aware information at www.facebook.com/RedShoesRock/

Dont be afriad too chase after your Dreams ♡

The Fetal Mind

You Will/Can Accomplish EVERYTHING, Everyone told you, you couldnt ♡

I’m going to accomplish EVERYTHING that EVERYONE has told me I can’t or I won’t!!!

I’m going to get somewhere in life.

I’m going to get my G2 (Drivers license)

I’m going to buy a cheap Jeep Patriot or Jeep Liberty, than I’m going to work my way up to my dream car that people say “Will never happen” A Lime Green Jeep Wrangler, Lifted, Black Rims and Tinted windows. But at this point I’m fine with any Wrangler, just so I can come back and say “I DID IT, and Prove you all WRONG”

I’m going to get a part time job till I can find a career path to follow.
Right now I’m thinking of being a Fitness YouTuber and on the side I want to be able to teach others about FASD.

I’m going to find…

View original post 87 more words

6 Ways to Advocate for FASD

via 6 Ways to Advocate for FASD

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Visit us at www.embracedmovement.org to learn more about the 90-minute documentary. Join us is sharing the Red Shoes Rock FASD Aware information at www.facebook.com/RedShoesRock/

Who opened minds in Australia of FASD and Cared for Over 100 Children

Red Shoes Rock Thanks Neroli Endacott as a Pioneer in FASD Education
Thank You!

Neroli is renowned for caring for over one hundred disadvantaged children, including her notable (diagnostic) recognition of children with FASD.

Shelli Hastings - Neroli Endacott(Middle)  - Doug Shelton
Shelli Hastings – Neroli Endacott(Middle) – Doug Shelton

Initially, Neroli struggled to get support from local doctors as most did not believe her ‘stories’ or her personal “diagnosis” of the children in her care. This lack of knowledge on our home soil in Australia inspired Neroli’s goal to raise awareness of FASD.

In the beginning Neroli made phone calls to Alberta in Canada asking for any information she could get to assist and help the children she cared for. It has now been over twenty years since Neroli had her first ‘FASD child diagnosed at birth with distinctive facial features’. This gave Neroli great motivation, strength and determination to keep fighting for support for all children effected.
Neroli had the monumental task of educating people and trying to implement her mantra of “Drinking when pregnant is like playing Russian Roulette”. The introductory shocked many, including Neroli’s family. She was hounding doctors and relentlessly knocking on doors desperately trying to find a ‘Professional’ to assist her. Most thought that she was crazy herself considering such a suggestion about alcohol and its possible effect on unborn children.

Eventually people saw this issue for what it was, and they learnt not to question as they saw the work she was achieving with the children in her care.

In 2006 Neroli made an appointment with the Hospital Clinic in the hope someone there may know about FASD or would at least listen to her.
The Doctor assigned was Paediatrician, Dr Doug Shelton, who pleasantly asked why she was there. Neroli responded with: “My Foster Children have FASD” Dr Doug’s initial response was: “What’s that?”
Thankfully, Doug listened to Neroli as she detailed with confidence, her children’s problems with FASD. Doug was aware of FASD in babies born with facial features but not so of the devastating results alcohol caused to those without facial features.

Doug, being a very dedicated man, took the next step and tried to find somewhere in Australia to get training for FASD but to his shock there was nowhere.

Queensland Health, to everyone’s gratitude, came to the party sending Doug and six colleagues to Vancouver, Canada to be trained in how to diagnose FASD. In 2014 Doug and his Team started the first FASD Clinic in Australia on the Gold Coast. Part of the Team includes Shelli Hastings a Family Psychologist who also supported Neroli and her foster children. Shelli and Natalie Turvey, another Psychologist stated that they learned and recognised FASD in other of their patients after spending time with Neroli and her experiences she shared plus having Neroli’s foster children as clients.
Stepping back in time, Darren, a Manager of Children’s Services in Alberta, Canada, informed Neroli about a lady in Adelaide, Sue Miers, who was very informative on FASD.
Neroli contacted Sue and the two quickly became great friends and colleagues and remain so to this day. Neroli refers to Sue as her Mentor.
Neroli became active on line and created a web site in a single night, drawing a picture of a lady saying no to a drink. She also advised on her site about the real risks surrounding drinking when pregnant and that it can cause FASD which is permanent brain damage. Neroli wanted to make an impact and she added another drawing of a baby in a wine glass which was frowned upon by others who quickly asked for it to be removed. Neroli was actively trying to hit home and get the message out. The web site was to advertise Sue’s visit in 2006. Twelve years ago. http://www.fasdgoldcoast.org/

How things have changed since then.

Sue travelled from Adelaide to the Gold Coast to assist Neroli in raising awareness of FASD in the Gold Coast community. Neroli became actively involved with the NOFASD group and took on a role as a Board Member, representing them for Queensland.
At age 74, in 2018, Neroli continues to provide support to many families raising children with suspected FASD sharing her many years of knowledge and experience. She still often offers her time as respite to assist families with their own children in need. Neroli has cared for children from babies to young adults and realises the need for an early intervention.
As a volunteer, Neroli has made presentations at both men’s and woman’s groups, she has started a local group to raise awareness with Jann Stuckey MP – the then Shadow Minister for Child Safety, Disability Services and Mental Health and she is often making home visits showing FASD DVD’s to parents and children. The home visits gave many family’s the information they need to understand FASD and ask for support from doctors and teachers.
Neroli and her FASD Foster Daughter assisted Dr Doug Shelton at meetings and seminars explaining FASD to professionals in the hospital. Doug and Neroli spoke to Psychiatrists together to inform them of what to expect dealing with young people with FASD, prior to the children becoming their patient. Doug & Shelli also did the same. All part of raising awareness for FASD. Neroli – always on her “soap box” speaks to everyone and anyone whenever she gets the chance. Policemen, Police woman, Teachers, School Principals, Sports Clubs, people in all sorts of jobs and positions besides of course – the Doctors and all Professionals connected.
Neroli has often spoken on TV and local Radio, taken part in recording and distributing DVD’s regarding FASD in Australia. She has presented in TV programs, SBS Insight “Drinking When Pregnant” and “Hidden Harm” on ABC Australia http://www.abc.net.au/4corners/hidden-harm-promo/6896966 Re: Gold Coast FASD Clinic – First in Australia – Neroli has the utmost respect, admiration and support for Dr Doug Shelton and what he has achieved and states she got to a stage where she never believed she would see this in her life time and is so happy Doug believed in her.
Doug and his Team, including Shelli Hastings are now assisting and supporting hundreds of families understand FASD and having the opportunity of FASD diagnosed here on the Gold Coast is a dream come true for Neroli.

Neroli provides credible and up-to-date evidence-based information to local doctors, thanks to NOFASD.

Neroli’s selfless generosity of spirit and dedication never falters and we are all blessed to have her bring this serious matter to the attention of Australian mums to be and the medical field. Her continued dedication, assisting, supporting and raising awareness for FASD is invaluable.

Feature photo credit – Copyright: krabata / 123RF Stock Photo

Well worn Red Shoes keep rocking for the journey ahead

RED SHOES ROCK THANKS Dr. Elizabeth Elliott
We appreciate ALL your HARD WORK!

My red shoes in the red Australian outback! Symbolic that FASD is prevalent in Australia, including in remote and Aboriginal communities. This painting of the Fitzroy Valley – where FASD prevalence is estimated to be 20% – was done by a senior woman Daisy Andrews. The shoes are well-worn through lots of hard work by many Aboriginal and non-Aboriginal people, but still for wearing for the journey ahead.” — Liz Ellliot

Professor Elizabeth Elliott AM FAHMS

Professor Elliott has made an extraordinary contribution to healthcare in Australia, and has been a true pioneer in the FASD field. She has been involved in clinical services, research, advocacy and policy development regarding FASD in children, and alcohol use in pregnancy, for over 20 years. Her efforts have improved health care services in FASD and changed health outcomes for children and families living with and affected by FASD. Her contributions include:

Research

Professor Elliott is a researcher and Co-Director of the NHMRC Centre for Research Excellence on FASD (FASD Research Australia). She was lead paediatrician in the Lililwan Project to determine FASD in the remote Fitzroy Valley in the Kimberley, Western Australia and is a chief investigator on NHMRC projects to examine alcohol use in pregnancy and child outcomes in two Australian birth cohorts; to address behavioural problems in children with FASD (Jandu Yani U); to follow the Lililwan cohort into adolescence (Bigiswun project); and to introduce consistent practice regarding asking and advising on alcohol use in pregnancy. She has supervised 6 PhD students working on FASD and has over 400 publications in peer reviewed journals, technical reports, research reports, books, book chapters and editorials, which can be viewed here.

Advocacy and Policy

Professor Elliott added her voice to the political processes which were essential to ensure that FASD was recognised and addressed in Australia’s health agenda. A powerful and informed advocate, Professor Elliott has been a keynote, invited, or abstract presenter at numerous conferences, symposia and related events including International FASD Conferences in Canada, the Royal Society of Medicine London, the first International conference on FASD prevention in Edmonton, the European FASD conference, and a WHO Global Alcohol meeting. Professor Elliott is currently Co-Chair of the 2nd Australasian FASD Conference 2018. She has contributed to alcohol policies and statements developed by the WHO, NHMRC, Royal Australasian College of Physicians and the Australian Medical Association. She is a Champion for the Pregnant Pause Campaign and a NOFASD Ambassador.

Education of Health Professionals

The availability and accessibility of medical education and training related to FASD has been furthered by Professor Elliott through a number of projects. She currently leads the development of a national FASD information hub (FASD Hub Australia) and a national FASD Registry. She supported the Foundation for Alcohol Research and Education (FARE) – Women Want to Know project designed to increase health professional knowledge of effective advice and guidance around alcohol and pregnancy; and jointly led development of the Australian Guide to the Diagnosis of FASD and production of e-modules, and contributed to NSW Health resources on FASD for indigenous services.

Quality Health Care

As a health care provider Professor Elliott’s commitment to quality health and medical care for families is evident in her role as Co-Director of the CICADA Centre for Care and Intervention for Children and Adolescents affected by Drugs and Alcohol and Head of the NSW FASD Service.

Public Campaigns

Professor Elliott has initiated and been involved in many public campaigns related to FASD. She has been a witness for inquiries into FASD in Australia, alcohol use in Aboriginal and Torres Strait Islanders, and Advertising of Alcohol in New South Wales. For NOFASD Australia, Professor Elliott recently supported the Pregnant, Planning or Could Be initiative, an in-reach to 600 medical clinics across greater Sydney. She was involved in developing the Charter for the Prevention of FASD.

Professor Elliott is regularly approached by the media on matters related to FASD, and her work has strengthened Australia’s health systems and their capacity to respond to FASD.

https://www.youtube.com/watch?v=FYsKCxa1AG0

She has also produced DVDs and videos to educate professionals across Australia and worldwide. Of one FARE Australia wrote: written and narrated by one of Australia’s leaders in the field, paediatrician Professor Elizabeth Elliott from the University of Sydney, this video is a ‘must watch’ for anyone that is involved in the care and education of children.

The story of alcohol use in pregnancy from FAREAustralia on Vimeo.

https://vimeo.com/100859137

Professor Elliott is a Distinguished Professor in Paediatrics and Child Health in the Sydney University School of Medicine and Health Sciences; Consultant Paediatrician at the Sydney Children’s Hospitals Network, Westmead; Fellow of the Australian Academy of Health and Medical Sciences; and an NHMRC Medical Research Futures Fund Practitioner Fellow. In 2008 she was made a Member of the Order of Australia for services to paediatrics and child health. In 2018 she received the Australian Medical Association’s Excellence in Healthcare Award for her contributions to FASD.

Professor Elliott was presented with her award by AMA President, Dr Michael Gannon, at the AMA National Conference in Canberra.

Sue Miers, the founder of NOFASD Australia, describes Professor Elliott as instrumental in increasing knowledge and awareness, shifting attitudes and developing service delivery for FASD in Australia.

What is FASD Success?

Thank you Yvonne

our sacred breath

What does success for our children with Fetal Alcohol Spectrum Disorder look like? Most often it looks like nothing to those who do not know the struggles and challenges we face and that sometimes what seems like no big deal to others, is a huge deal in our world.

The maiden turns 20 tomorrow. We’ve been together almost twelve years. She told me she is getting up at 7:20 a.m. tomorrow because that’s what time she was born. I told her I wasn’t present at her birth 20 years ago, but I’ll be up with her tomorrow to help her celebrate her 20th.

D59C9B22-C712-4F71-9C90-31AA0D192BB5

I thought in honour of her birthday, I’d share a real success story – on so many levels.

Last week she went to a week long day camp for adults with FASD. She has had very little success at “special needs” camps – because they don’t get…

View original post 315 more words

NOFAS

Organizing and creating a collaborative unified voice of FASD prevention and
support
Kathleen Tavenner Mitchell
National Organization on Fetal Alcohol Syndrome (NOFAS), Washington, DC, USA
Objectives: NOFAS has successfully organized 41 national and international affiliates. NOFAS serves as a liaison to all federal agencies that address FASD, FASD researchers and has partnerships with key professional groups such as the American College of Obstetrics and Gynecology (ACOG) and American Academy of Pediatrics (AAP). Creating an environment of collaboration, communication and unity results in successful FASD prevention, legislation, and support for individuals and their families living with FASD.
Materials & Methods: NOFAS invited grassroots FASD groups across the U.S. join them to create change and awareness of FASD. The NOFAS affiliates communicate monthly and meet annually for FASD Hill Day and the NOFAS Affiliate Summit.
Results: Successes include securing legislation and appropriations, formation and participation of FASD task forces, partnering and sharing of materials and resources, fund raising, and collaborative media events. All share a common goal: to prevent FASD. Creating an inclusive, open system strengthened both NOFAS and their affiliates.
Conclusion: NOFAS and their 41 affiliates continue to evolve, grow and change. NOFAS affiliates are a creative, enthusiastic group that have conducted research, facilitated public awareness, and work together to monitor the government agencies that address FASD and to mobilize policy makers, professional groups, and systems of care. As Aesop taught us, “United we stand, divided we fall”.
The U.S. National Organization on Fetal Alcohol Syndrome (NOFAS): 25 years
Kathleen Tavenner Mitchell 
National Organization on Fetal Alcohol Syndrome (NOFAS), Washington, DC, USA
Objectives: NOFAS was the pioneer in FAS and remains the U.S. national organization focused on FAS. NOFAS has orchestrated every hearing and briefing held on FASD. NOFAS serves as a liaison to all federal agencies that address FASD, FASD researchers, families living with FASD and has partnerships with key professional groups.
Materials & Methods: There has been much progress in the U.S. NOFAS has been involved (or aware) of all U.S. FASD activities for 25 years and has a timeline of past and current FASD activities, media, awareness campaigns, legislation, research, curriculum, parent groups, intervention and promising models for individuals with FASD, and outreach to birth mothers.
Results: Successes in the U.S. include 4 evidence based intervention models, the American Academy of Pediatrics has produced an FASD Toolkit, the Centers for Disease Control is prioritizing getting screening for alcohol a standard practice of care in primary health, FASD is now listed in the DSM, and the American Bar Association passed an FASD Resolution. Current problems in the legal system include recent laws that will incarcerate women for drinking.
Conclusion: The U.S. is making great strides in community and professional advocacy, but has a long way to go in addressing the stigma, blaming, and the over-simplification of FASD prevention.
Lessons learned from a cohort of birth mothers to children with FASD: The NOFAS
Circle of Hope (COH)
Kathleen Tavenner Mitchell
National Organization on Fetal Alcohol Syndrome (NOFAS), Washington, DC, USA
Objectives:
The Circle of Hope (COH) is a peer mentoring program designed to support birth
mothers. Women that have used alcohol or other drugs while pregnant are likely to drink in their
next pregnancy if they are not educated or provided support. Membership has expanded to over
600 members and includes state, agency, and international COH affiliations. Successes include the
peer mentorship, intervention and referral to treatment, the Women in Recovery Summits, and the
speaker’s bureau. In 2012 COH members were surveyed and 92 women responded.
Materials & methods:
The 32 question survey sought to capture a factual profile of the
characteristics of women that have drank while pregnant. Respondents included women from
America, Europe, Canada and Australia.
Results:
The confidential survey provided an opportunity to collect an honest report of alcohol and
other exposures from a cohort of women that are viewed as being difficult to obtain information
from. Women reported on their beliefs, behaviors and lifestyles and birth outcomes.
Conclusion:
Understanding why women drink while pregnant is an important first step in reducing
the stigma and developing prevention messages. Their stories are important in developing models of
intervention and policy. The bond between birth mothers has global reach. Countries from across the
seas can be connected to work together to support women to prevent FASD.
The NOFAS K-12 FASD prevention curriculum: an evidence-based model for
educating school age populations on FASD
Kathleen Tavenner Mitchell
National Organization on Fetal Alcohol Syndrome (NOFAS), Washington, DC, USA
Objectives:
According to the U.S. Surgeon General early education about healthy lifestyle choices
and behaviors is the most effective method to address major health concerns. The NOFAS
curriculum is designed to engage students and raise awareness about drinking during pregnancy.
The emphasis of the curriculum is on alcohol, addiction to alcohol and how alcohol can effect fetal
development. The lessons include the skills of making decisions, setting goals, and carrying out action
plans to meet those goals.
Materials and methods:
The curriculum includes four modules (K-2, 3-5, 6-8, and 9-12) and each
includes lesson plans and educational materials. Methodologies include a DVD, FASD Brain model,
youth book, and puzzles.
Results:
The curriculum is easily integrated into several different units in a standard health
curriculum. For instance, in the U.S., an average high school health curriculum is broken down into
several units including,
Alcohol Tobacco and Drugs, Reproduction and Pregnancy, Health Promotion and Disease
Prevention
covering a wide range of topics. A variety of instructional strategies and methods are
essential in addressing the many needs and interests of students.
Conclusions:
The curriculum has been disseminated across the U.S. and worldwide. The evaluations
reported that both teachers and students enjoyed the methodologies and both increased awareness
about drinking and pregnancy after receiving the lesson.

Free Russian and Ukrainian Translations Best I Can Be Living with FASD by Liz Kulp

We are all in this together and it will take a whole world to understand!

RedShoesRock-Conversation
Yes you can right click and use this artwork FREE or you can double click to buy vehicle window clings

The Kulp family has graciously allowed the Best I Can Be: Living With Fetal Alcohol to be translated into Russian and Ukrainian. The translations were sponsored by  UKRAINE WORKS.

Mom’s Choice Recipient, Liz Kulp, as a young teen with Fetal Alcohol challenged the world to peer inside her life and brain. Through her own writings the reader is taken on a life changing journey that will impact their thinking about how to help and understand children with brain damage due to Fetal Alcohol.

“Mom, I want to write a book anout what it’s like to have FASD (fetal alcohol spectrum disorders) I think people need to know”

 … and so began Liz’s and my journey in writing The Best I Can Be – Living with Fetal Alcohol Syndrome. Liz was right, it was a story that needed to be told. Fetal Alcohol Exposure is a leading cause of cognitive challenges and intellectual disability in the western world. It is estimated that one out of 10,000* children born each year in the United States as FAS (Fetal Alcohol Syndrome with facial features) and one out of 100** have FASD (without facial features).

Research and experience has proven one label is not better or worse than the other. Tens of thousands of newborn US children each year will have to learn to cope with this disability. It is time to come out of denial – alcohol consumption during pregnancy is not safe.

Let Liz take you on our journey – it is a journey of hope, of dedication and of perseverance. Thank you Liz for your courage to share your story. The Best I Can Be Living with Fetal Alcohol Spectrum Disorders (Available at Amazon) by Liz Kulp and Jodee Kulp is a recipient of the prestigious Mom’s Choice Award for Best Young Contributing Author.

FREE UKRAINIAN TRANSLATIONS

Ukrainian_Best I Can Be 88

FREE UKRAINIAN BOOK Best I Can Be Living with FASD by Liz Kulp
Download FREE UKRAINIAN BOOK Best I Can Be Living with FASD by Liz Kulp

FREE RUSSIAN TRANSLATIONS

FASD Characteristic Chart
russian_Best I Can Be 90

FREE RUSSIAN translation of The Best I Can Be Living with Fetal Alcohol
Download FREE RUSSIAN translation of The Best I Can Be Living with Fetal Alcohol by Liz Kulp
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