FEAR: Where is the housing?

Creating a Home: Innovative Housing Solutions for Our Loved Ones with FASD

As we navigate the journey of supporting our loved ones with Fetal Alcohol Spectrum Disorder (FASD), one of our biggest concerns is often, “Where will they live when they’re adults?” I’ve explored this question, we created a liveability environment for 15 years for our daughter and her partner. I’m excited to share some creative housing solutions that prioritize what really matters – liveability and support.

In 2009, we were able to purchase a tiny (700 sq ft) foreclosed property adjacent to our family home and set it up for TeamLiz. Liz and her partner lived in that little home for 15 years until she passed at age 38. Having her own space and not under our feet, but under our bedroom window provided the independence and interdependent needed to live successfully and purposefully in her own home.

Let’s start by looking at what makes a home truly liveable for our special adults.

Liveability Considerations: The Heart of a Home

When we’re thinking about housing for our loved ones with FASD, here are some key factors to keep in mind:

  1. Predictable Environment: We all know how important routines are. A home that supports consistent schedules and clear expectations can make a world of difference.
  2. Sensory-Friendly Design: Remember those meltdowns triggered by too much noise or bright lights? Look for homes with sound-dampening materials and adjustable lighting to help manage sensory sensitivities.
  3. Safety Features: We can’t be there 24/7, but we can ensure their home is safe. Think automatic stove shut-offs and secure entry systems – little things that can prevent big accidents.
  4. Community Integration: Location matters! A home near public transportation, job opportunities, and community resources can help our loved ones stay connected and independent.
  5. Flexible Support: As needs change over time, the level of support should be able to change too. Flexibility is key for long-term success.

Now, let’s look at some exciting housing options that incorporate these liveability factors:

Supported Independent Living

Imagine your loved one in their own apartment, with help just a call away. This option allows for independence while ensuring support is always available.

Intentional Communities

These are like little villages designed specifically for adults with FASD. They offer a beautiful balance of privacy and community support.

Host Family Programs

Some regions have programs where adults with FASD live with carefully selected families. It’s like having a second family to provide a supportive home environment.

Smart Home Technology

We live in an amazing time where technology can help our loved ones live independently. From medication reminders to voice-activated assistants, these tools can be game-changers.

Co-Housing with Neurotypical Peers

This arrangement allows adults with FASD to live alongside neurotypical roommates. It’s a great way to promote social integration and mutual support.

Tiny Home Communities

Compact, efficient, and often designed with FASD needs in mind, tiny homes are becoming an exciting option in some areas. Remember, the goal isn’t just to find a place for our loved ones to live – it’s about creating a home where they can truly thrive.

As you explore options, let’s keep our adults with FASD involved in the conversation. Their insights are invaluable in creating housing solutions that really work. I hope these ideas spark some inspiration and hope. With creativity and care, we can help ensure our loved ones with FASD have homes that support their unique needs and enhance their quality of life. After all, isn’t that what we all want for those we love?

Published by jodeekulp

Jodee Kulp, is an award-winning author, producer and advocate who works tirelessly to serve children and families of Fetal Alcohol Spectrum Disorders (FASD). Her behavioral work in understanding canine fear and applying it to helping adults gain life skills is momumental and parallels our work with EAGALA Equine Therapy. It will be exciting to watch this progress. - Chris Troutt, Papillion Center Current Projects include: Pearlz Work Embraced Movement PraiseMoves LIFT (Laughter in Fitness Training) LiveAbilities Red Shoes Rock. Stop FASD PawZup Life Stories

3 thoughts on “FEAR: Where is the housing?

  1. It’s amazing you were able to do that for and with Liz. I dream about having a tiny home next to our home for my son one day. It’s the perfect dream arrangement.

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    1. It was a miracle, we had looked at buying the little house twice when it went up for sale and could not afford it. When the US had the financial downfall in 2008, the house foreclosed and I cashed out my life insurance to make it happen. It was a complex time, but very successful in so many ways. Look up Echo housing and see if your community allows it. All the best – Jodee

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      1. Thanks Jodee. I’m in Canada so not sure if it’s here but will take a look. Despite your challenges, it sounds like it was a worthwhile investment. 🙏

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