(Updated 4/13/2019) We love to share the Best Links on FASD. If you want to know more about Fetal Alcohol Spectrum Disorders, here are Red Shoes Rocks favorite links… If you have a favorite link add it to comments below and we will check it out… We are always looking for the best!
- Treatment Improvement Protocol (TIP) 58: Addressing Fetal Alcohol Spectrum Disorders (FASD) – 2013
Reviews alcohol screening tools and interventions for use with pregnant women and women of childbearing age to prevent FASD. It also outlines methods for identifying people affected by FASD and modifying treatment accordingly.
- FASD Toolkit for Aboriginal Families
This Tool Kit was prepared as a “user-friendly” resource tohelp front line workers working with children, youth, adultsand families affected by Fetal Alcohol Spectrum Disorder. Itwas prepared with the generous support of the Public HealthAgency of Canada.
- Canada FASD Research Center –
CanFASD is a collaborative, interdisciplinary research network, with collaborators, researchers and partners across the nation.
- Know FASD Knowledge Base –
This site introduces the neurobehavioural difficulties that may appear throughout the lifespan of individuals with FASD. It is important to recognize that, being a spectrum disorder, FASD can look different for different individuals. Not all individuals with FASD will experience all of the issues presented here. However, this site summarizes the common neurobehavioural features of FASD found in current research. The problems presented on this site are not necessarily gender specific.
- Canadian Government –
FASD, its cause, signs and symptoms, health effects, prevention, support and information for professionals.
- Center for Disease Control – FASD (CDC)
The mission of the CDC’s National Center on Birth Defects and Developmental Disabilities is to promote the health of babies, children, and adults and enhance the potential for full, productive living by working to identify the causes of birth defects and developmental disabilities; help children to develop and reach their full potential; and promote the health and well-being among people of all ages with disabilities, including blood disorders. The center’s Fetal Alcohol Syndrome Prevention Team works to prevent FASDs and to ameliorate these conditions for individuals and families already living with FASDs.
- National Institute on Alcohol Abuse and Alcoholism (NIAAA)
The NIAAA is one of the 27 institutes and centers that comprise the National Institutes of Health (NIH). The NIAAA supports and conducts research on the impact of alcohol use on human health and well-being. It is the largest funder of alcohol research in the world.
- SAMHSA FASD Center for Excellence (though no longer funded this will take you to resources they original project produced)
The SAMHSA FASD Center was a federal initiative devoted to preventing and treating FASDs.
Parents of persons living with FASD
understand everyday living – Great resources!
- FASWorld.org – by Brian Philcox and Bonnie Buxton, Canada
Filled with ideas
- BetterEndings.org – by Jodee Kulp, USA
LiveAbilities strategies for families to grow together.
- RealMindz.com –
- International site that brings together thoughtful parenting techniques for persons with neurodiversity. This consortium supports the internet Red Shoes Rock Campaign Project
- Realpeople.Realmindz.com – 90 individuals living with FASD tell their stories (currently offline)
- Realfamilies.Realmindz.com – families share their stories and dreams for the individuals they love living with FASD
- Parenting Complex Children – by Ann Yurcek
This site is filled with ideas to help caregivers and professionals, she also blogs at Mackie’s World and Keeping Up with the Tiny Titan
- FASD – Learning with Hope – by SB and MB from UK
One family’s journey
- Our Sacred Breathe – by Yvonne Williams from Canada
Excellent blog filled with links and statistics – dig through the Red Shoes Rock Campaign info
- Come Over To – by Teresa Kellerman – A treasure trove of insight and ideas
- FASD Forever – by Jeff Noble from Canada
skilled in working with persons living with FASD
- OregonBehavior.com – Nate Sheets (USA) – Provides You Tube videos to help you understand this complex disability
- Edmonton and area Fetal Alcohol Network Society – Every brain is different.
- Resilency for Life – Michael Ballard (Canada)
Helps people discover key skills that will assist them make a significant difference in their lives.
- Advancement of Forensic Studies – Jerrod Brown (USA)
Working towards making a difference for individuals with FASD in the judicial system
- Central Alberta FASD Network – a regional connection to the Alberta FASD Service Network initiative. This province-wide network of community and government agencies works to promote FASD prevention, and to provide services to families and individuals.
dedicated to working with students who have FASD
- Families Moving Forward Program — University of Washington
The Families Moving Forward (FMF) Program helps children with fetal alcohol spectrum disorders (FASD), their families, and the professionals who care for them.
Educational strategies that may make a difference for persons living with FASDs.
- NoFAS Australia – Excellent site with depth for individuals, caregivers and professionals – well done!
- National Organization on Fetal Alcohol Syndrome (NOFAS)
NOFAS is the leading voice and resource of the FASD community. Founded in 1990, NOFAS is the only international nonprofit organization committed solely to FASD primary prevention, advocacy, and support.
- European Fetal Alcohol Alliance – International Too Young to Drink Campaign
- Proof Alliance – Minnesota Organization on Fetal Alcohol Syndrome
Proof Alliance (originally MOFAS) has a wide variety of resources on Fetal Alcohol Spectrum Disorders ( FASD) available to you.
- American Academy of Pediatrics – FASD toolkit
There is no known safe amount of alcohol
or safe time to drink alcohol during pregnancy.