FEAR: Prepare for when I am gone.

Embracing the Future: 6 Loving Ways to Plan for Your Child’s Care

As parents and caregivers of our precious children with FASD or intellectual challenges, our love and dedication know no bounds. Yet, we often find ourselves grappling with a challenging question: “What will happen to my child when I’m no longer here?” Addressing this isn’t about giving up; it’s one of the most loving actions we can take for our children’s future. Planning for our child’s care after we’re gone is an extension of the love and protection we provide every day. It’s about ensuring that the support, understanding, and care we give so freely will continue. Here are six loving ways we can prepare:

  1. Create a Detailed Care Plan
    Document your child’s daily routines, medical needs, likes, dislikes, and effective strategies for managing challenges. This invaluable resource will guide future caregivers in providing consistent, loving care.
  2. Build a Support Network
    Identify and nurture relationships with family members, friends, and professionals who can form a caring support system for your child. Regular gatherings or check-ins can help solidify these connections.
  3. Set Up a Special Needs Trust
    This legal arrangement can provide financial support for your child without jeopardizing their eligibility for government benefits. It’s a way to ensure their needs are met long into the future.
  4. Explore Housing Options
    Research and visit potential living arrangements that could suit your child in the future. This might include group homes, assisted living facilities, or supported independent living programs.
  5. Teach Independence Skills
    Gradually work on life skills that can increase your child’s independence. This could be as simple as making a sandwich or as complex as managing a daily schedule. Every bit of independence is a gift.
  6. Consider Burial or Final Expense Insurance
    This type of insurance can cover a range of end-of-life expenses, providing a financial cushion for our children or their future caregivers. It’s a way of saying, “I love you, and I’ll always take care of you,” even when we’re no longer physically present.

Remember, planning for the future doesn’t mean we’re giving up on the present. It means we’re extending our love and care beyond our lifetime. It’s a profound act of love that says, “I will always be there for you, no matter what.” So, let’s approach this planning with the same love, courage, and dedication we bring to every aspect of caring for our special children. By taking these steps, we’re not just providing for their future – we’re wrapping them in our enduring love and protection for years to come. Each of these actions is a testament to our unconditional love. They allow us to continue nurturing and supporting our children, ensuring that the world will understand and care for them as we do. In this way, our love becomes eternal, a lasting embrace that will comfort and protect our children always.

Published by jodeekulp

Jodee Kulp, is an award-winning author, producer and advocate who works tirelessly to serve children and families of Fetal Alcohol Spectrum Disorders (FASD). Her behavioral work in understanding canine fear and applying it to helping adults gain life skills is momumental and parallels our work with EAGALA Equine Therapy. It will be exciting to watch this progress. - Chris Troutt, Papillion Center Current Projects include: Pearlz Work Embraced Movement PraiseMoves LIFT (Laughter in Fitness Training) LiveAbilities Red Shoes Rock. Stop FASD PawZup Life Stories

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