ADVOCACY: Ideas? Did you meet Mom?

I once sat with a doctor who told my mom, “You are the problem. The medical system does not know what to do with you!” And he laughed. He said it in love. My mom fights for me when I can’t.

Here are some advocacy ideas.

Educate Yourself and Others

1. Learn about FASD: Understand the specific challenges associated with FASD, including cognitive, behavioral, and physical effects.
2. Educate others: Inform teachers, family members, and caregivers about FASD to promote understanding and appropriate support.

Educational Advocacy

3. Communicate with educators: Regularly discuss your child’s unique needs, strengths, and challenges with teachers and school staff.
4. Pursue appropriate educational plans: Advocate for Individualized Education Programs (IEPs) or 504 plans that address FASD-specific needs.
5. Request FASD-informed accommodations: Such as visual aids, structured routines, and frequent breaks.

Medical and Therapeutic Support

6. Coordinate with healthcare providers: Ensure your child receives comprehensive medical care addressing FASD-related issues.
7. Advocate for appropriate therapies: Push for access to occupational, speech, and behavioral therapies tailored to FASD needs.

Legal and Social Support

8. Understand legal rights: Familiarize yourself with disability laws and rights pertaining to FASD.
9. Connect with FASD communities: Join support groups and organizations for families affected by FASD.

Home and Environment

10. Create a structured home environment: Implement consistent routines and visual schedules to support your child’s needs.
11. Advocate for sensory-friendly spaces: Both at home and in public settings.

Long-term Planning

12. Plan for transitions: Advocate for support during key life transitions, such as entering school or moving to independent living.
13. Promote self-advocacy: Teach your child to understand and communicate their own needs as they grow older.

Documentation and Communication

14. Keep detailed records: Document your child’s progress, challenges, and all communications with schools and healthcare providers.
15. Use clear, concise communication: When advocating, use specific examples and clear language to describe your child’s needs.

Advocacy for children with FASD often requires persistence and patience. Focus on your child’s strengths while addressing their challenges, and don’t hesitate to seek support for yourself in this important role.

TODAY’S NOTE: “Liz may have passed onto the next level of her living, in heaven, not on earth. She will continue to add her FAScinating Lines from Liz as planned for our Red Shoes Rock FASD Aware 2024 campaign.” – In Solidarity, Liz“