Living with Fetal Alcohol Spectrum Disorder (FASD) can bring unique challenges, but it’s important to remember that support is available. Whether you’re dealing with medical, mental, social, financial, or housing issues, there are people and resources ready to help.
Here’s a guide to finding the support you need.
Medical Support
1. Talk to Your Doctor
Your primary care physician can be a great starting point. They can provide medical advice, prescribe medication if needed, and refer you to specialists.
2. Seek Specialists
Look for professionals who specialize in FASD or related conditions. This might include neurologists, psychologists, or occupational therapists.
3. Use Telehealth Services
If in-person visits are difficult, consider telehealth options. Many doctors now offer virtual consultations.
Mental Health Support
1. Find a Therapist
A therapist can help you manage stress, anxiety, and other mental health issues. Look for someone experienced in working with FASD.
2. Join Support Groups
Support groups, either in-person or online, can provide a sense of community and understanding. You can share experiences and coping strategies with others who have similar challenges.
3. Use Mental Health Apps
There are many apps designed to help with mindfulness, meditation, and mental health tracking. These can be useful tools for managing your mental well-being.
Social Support
1. Reach Out to Friends and Family
Don’t hesitate to ask for help from those close to you. They can offer emotional support and practical assistance.
2. Engage in Community Activities
Join clubs, sports teams, or hobby groups. Places of faith often have activities. These activities can help you build social connections and feel more integrated into your community.
3. Use Social Media Wisely
Social media can be a great way to connect with others, but it’s important to use it mindfully to avoid feeling overwhelmed.
Financial Support
1. Consult a Financial Advisor
A financial advisor can help you manage your money, create a budget, and plan for the future. Look for someone who understands the challenges of living with FASD. Think about having a RepPayee to watch over your money.
2. Use Financial Planning Tools
There are many online tools and apps that can help you keep track of your finances and make informed decisions.
3. Seek Financial Assistance Programs
Look into government and non-profit programs that offer financial assistance for people with disabilities.
Housing Support
1. Contact Housing Authorities
Local housing authorities can provide information on affordable housing options and assistance programs.
2. Explore Supported Living Options
Supported living arrangements can offer a balance of independence and assistance. These might include group homes or assisted living facilities.
3. Use Housing Resources
There are many organizations that specialize in helping people with disabilities find suitable housing. They can offer advice and support throughout the process.
General Tips for Finding Support
1. Be Open About Your Needs
Communicate clearly about what you need help with. The more specific you are, the easier it will be for others to assist you.
2. Use Multiple Resources
Don’t rely on just one source of support. Use a combination of family, friends, professionals, and community resources.
3. Stay Organized
Keep track of appointments, contacts, and resources. Use a planner or digital tool to help you stay organized. Or delegate another person to help you do this. I have my mom keep me organized with all my medical appointments which are at least four times every week!
4. Advocate for Yourself
Speak up for your needs. You deserve support and understanding.
Finding support when you have FASD involves reaching out to the right people and resources. Whether you need help with medical issues, mental health, social connections, finances, or housing, there are many options available. Remember, you’re not alone, and there are people ready to help you navigate these challenges. Take it one step at a time, and don’t hesitate to ask for the support you need.
Here are some HELP LINES – In our city there are also counselors available by phone through the middle of the night to reach out to.
- National Health Service (NHS) helpline:
If you’re in the UK, you can call 111 for non-emergency medical advice. This service is available 24/7 and is free to call. - Local health department hotlines:
Many cities and counties have health department hotlines that can provide medical information and guidance. - Poison Control Center:
In the US, you can call 1-800-222-1222 for any poison-related emergencies or questions. This line is staffed 24/7 by medical professionals. - Mental health crisis lines:
Many countries have dedicated helplines for mental health support. For example, in the US, you can call 988 for the Suicide and Crisis Lifeline.
TODAY’S NOTE: “Being so sick now for so many years, my life is smaller and smaller, and my support team gets bigger and bigger. I really would like my life back, FASD was the easy part of living with everything I do.” – In Solidarity, Liz
Red Shoes Rock 